ACT UP : Real Treatments for Real People



Useful contact numbers
Newsletters/publications (often free to people with HIV)
AIDS Treatment News1-800-TREAT-1-2; 415-255-0588
AmFAR Treatment Directory Quarterly800 458-5231
Being Alive213-667-3262
BETA (Bulletin of Experimental Treatments for AIDS)800 959 1059
Body Positive212 721-1346
Common Factor1-800-488-COTT (Committee of Ten Thousand)
Critical Path215-545-2212
Diseased Pariah News510-891-0455 (hilarious and too real!)
Notes from Underground212-255-0520 (PWA Health Group)
P.I. Perspectives800-822-7422 (Project Inform)
Pharmaceutical Manufacturers Association202-835-3400
Positively Aware (Glaxo Wellcome)312-404-8726 (Test Pos Aware Network)
POZ Magazine800-973-2376
Provincentown Positive508-487-3998
PWAC Newsline212-532-0568
PWA Rag (Prisoners with AIDS Rag)404-946-9346
Searchlight (Search Alliance)800-647-3272 or 213-930-8820
Step Perspective800-329-4857
TAGLine212-260-0300
The Connection HIV Update708-808-3921 (CareMark)
Treatment Issues (GMHC)212-337-3695 (GMHC)
Treatment Review (ATDN) 212-260-8868; network@atdn.org
Treatment Update800-263-1638 (Go Sean Hosein!!!)
Women Being Alive213-667-2735
WORLD (Women Organized to Respond...)510-658-6930
Hotlines and Information Sources
AIDS Clinical Trial Information Service (ACTIS)800-874-2572
AIDS Research Information Center410-783-0684
National Institute of Allergy and Infectious Disease (NIAID)/NIH Bethesda Maryland1-301-496-5717 (if ACTIS doesn't help) and they have AIDS Clinical Trials Group data (ACTG)
Experimental Treatments Info Line800-MEDS-4-HIV
800-633-7444 (NY State only)
212-239-5523
Florida AIDS Hotline800-352-2437
Florida AIDS Legal/Defense Fund800-342-8011
Lark Lands (Consultations)717-765-0699
Social Security Administration800-772-1213
Resource Information
AIDS Action Baltimore301-837-2437
AIDS Action Now (Toronto, Ontario)416-928-2206
AIDS Project Los Angeles213-993-1362/1482/1483/1484/1529
AIDS Treatment Data Network800-734-7104
AIDS Treatment Resources212-268-4196
ACT UP/Chicago312-509-6802
ACT UP/Golden Gate415-252-9200
ACT UP/Kansas City816-753-5930
ACT UP/Los Angeles213-669-7301
ACT UP/Miami305-787-1131
ACT UP/Minneapolis612-374-9349
ACT UP/New York212-564-AIDS
ACT UP/Philadelphia215-731-1844 (An excellent "HIV Standard of Care" is produced by them)
ACT UP/San Francisco415-563-0724
ACT UP/Sidney (Australia)612-283-3550
ACT UP/Washington, DC202-728-7530
AIDS Treatment News800-373-2812
AmFar212-719-0033 (Resource Directory of AIDS Treatments)
ARIC: AIDS Research Information Center410-783-0684
CAN ACT718-522-4607
Carl Vogel Foundation202-638-0750
Committee of Ten Thousand hemophiliacs1-800-488-COTT
CRIA/NY212-924-3934
Critical Path215-545-2212
Direct AIDS Alternative Information Resources (DAAIR)212-689-8140 (alternative AIDS therapies buyer's club)
Experimental Treatments Info Line800-MEDS-4-HIV
800-633-7444 (NY State only)
212-239-5523
Facts on Alternative AIDS Compounds and Treatments (FAACTS)415-548-9654
GMHC212-807-6655 or 212-807-7660
HEAL212-873-0780
Healing Alternatives Foundation415-626-2316
Housing Works212-966-0466
Immune Enhancement Program415-252-8711 (Chinese meds)
Am. College of Chinese Medicine415-282-7600
Marijuana AIDS Resource Service (MARS)202-328-6391
PWA Coalition212-675-1415 (office)
212-675-1420 (Hotline)
800-828-3280
PWA Voice 415-553-2560
Project Inform800-822-7422
Seattle Treatment Education Project (STEP)800-869-7837 or 206-329-4857
Treatment Alternatives Project (TAP)212-255-0520
Computer bulletin board (bbs) of AIDS information
AEGIS714-248-2836
Critical Path215-465-1015
HIVNET(From the US, dial 011 first) 31-20-664-7461
Immunet212-366-5666
Indigent Patient Programs (where all or nearly all drugs are available
Abbott800-688-9118 for clarithromycin (Biaxin)
Amgen800-272-9376 for G-CSF (Neupogen)
Astra800-488-3247 for foscarnet
Burroughs-Wellcome800-722-9294 for acyclovir, atovaquone, AZT, pyrimethamine, TMP/SMX (Bactrim)
Bristol-Myers800-788-0123 (d4T, ddI, Megace)
Eli Lilly317-276-2950
Fujisawa800-366-6323 (aerosolized pentamidine)
Glaxo800-248-9757 for 3TC (lamivudine)
Hoffmann-La Roche800-285-4484 for ddC, ganciclovir, IFN- 2A
Immunex800-321-4669 for GM-CSF (Leukine)
Janssen800-544-2987 for itraconazole and ketoconazole
Merck215-540-8600
Miles, Inc203-937-2000 for ciprofloxacin
Ortho Biotech800-441-1366 for erythropoeitin (Procrit or EPO)
Pfizer (other than fluconazole)212-573-3954
Arkansas: 800-221-3033
Kentucky: 606-255-7442)
800-869-9979 for flucon and azithromycin
Pharmacia800-795-9759 for rifabutin
Rhone-PoulencJane Green, Director, External Affairs, R-P Rorer, Inc. 500 Arcola Road, Collegeville, PA 19426
Roche Products800-526-6367 (teleprompt #2)
Roxane Labs800-274-8651 for dronabinol (Marinol)
Sandoz800-447-6673 for octreotide (Sandostatin)
Schering-Plough800-521-7157 for interferon alpha-2a (Intron)
3M Pharms800-328-0255
Upjohn616-329-8244
Other Useful Numbers
Canadian HIV Trials Network (Vancouver)604-631-5327
Ontario Region416-978-6066
National AIDS Hotline800-342-2437
National AIDS Hotline (Spanish)800-344-7432
National AIDS Hotline (TTY/TTD)800-243-7889
National AIDS Clearinghouse800 458 5231
National Trials Hotline800-TRIALS-A
National Trials Hotline/TTY-TTD800-AIDS-012
National Sex. Trans. Diseases Hotline (STDs)800-227-8922
National Herpes Hotline919-361-8488
San Francisco AIDS Foundation415-863-2437
San Francisco AIDS Foundation (N. CA)800-367-2437
San Francisco AIDS Foundation (TTD/TTY)415-864-6606
San Francisco Clinical Trials Directory (from SF Community Consortium (free)415-476-9554
National Gay & Lesbian Crisis Hotline800-767-4297
National Gay & Lesbian Crisis Hotline (NY,AK,HI)212-529-1604
Centers For Disease Control (Stats/STDS)404-639-0511
Centers For Disease Control (Stats/HIV)404-330-3020
Centers For Disease Control (Stats/HIV)404-330-3021
Centers For Disease Control (Stats/HIV)404-330-3022



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ACT UP: Real Treatments for Real People
Last modified: 12/12/97
George Carter
copyright © 1997 G. Carter

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